Posts Tagged ‘MLD’
Kendra Riley Takes the Stage at Alliance for Regenerative Medicine’s Meeting on the Mesa
On October 5, Dawning PR Founder Kendra Riley was featured on stage for a Patient Spotlight at the Alliance for Regenerative Medicine’s (ARM) Cell & Gene Meeting on the Mesa at the Arizona Biltmore in Phoenix. She spoke as a rare disease mom and Metachromatic Leukodystrophy (MLD) advocate, sharing her daughters’ journey in a conversation…
Read MoreDawning PR Founder Kendra Riley Advocates for Newborn Screening in Washington D.C.
After sweeping changes were made by the Trump administration to the Department of Health & Human Services, one committee was terminated whose work would have saved 1 baby born every week in the U.S. from MLD or Metachromatic Leukodystrophy – a disease that two of Dawning PR Founder Kendra Riley’s three children have/had. Just weeks…
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