Posts Tagged ‘Kendra Riley’
Kendra Riley Takes the Stage at Alliance for Regenerative Medicine’s Meeting on the Mesa
On October 5, Dawning PR Founder Kendra Riley was featured on stage for a Patient Spotlight at the Alliance for Regenerative Medicine’s (ARM) Cell & Gene Meeting on the Mesa at the Arizona Biltmore in Phoenix. She spoke as a rare disease mom and Metachromatic Leukodystrophy (MLD) advocate, sharing her daughters’ journey in a conversation…
Read MoreDawning PR Founder Kendra Riley Advocates for Newborn Screening in Washington D.C.
After sweeping changes were made by the Trump administration to the Department of Health & Human Services, one committee was terminated whose work would have saved 1 baby born every week in the U.S. from MLD or Metachromatic Leukodystrophy – a disease that two of Dawning PR Founder Kendra Riley’s three children have/had. Just weeks…
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