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Posts by superadmin

My daughter has a rare disease. We shouldn’t have had to leave the US to save her life.

Four years ago, my daughter Olivia was diagnosed with a rare and aggressive genetic disorder that attacks the brain and nervous system. She was rapidly losing the ability to walk and talk, and doctors told us that the disease was progressive, meaning Olivia’s condition would continue to worsen and she would eventually need hospice care.

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FDA approves new gene therapy treatment for kids priced at $4.25 million

Kendra Riley is a mother of three girls, two of whom — Olivia and Keira — were diagnosed with MLD. While Keira was fortunate to receive the gene therapy in Italy before showing symptoms, it was too late for Olivia, who is currently in hospice care.

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Scottsdale publicist pushes for expanded newborn screening after personal experience

When Scottsdale publicist Kendra Riley looks back on 2025, she’ll see more than client wins and business milestones. For her, this has been a year about momentum — for both her growing company and a cause that’s deeply personal.

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My daughter has a rare disease. We shouldn’t have had to leave the US to save her life.

FDA approves new gene therapy treatment for kids priced at $4.25 million

Scottsdale publicist pushes for expanded newborn screening after personal experience

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